HOW DO YOU MEASURE PAIN?
Using the McGill Pain Index, many diseases are rated out of 50 on this index.
Causalgia means "burning pain", another name for CRPS.
The score for cancer pain is 28 and for CRPS pain, a whopping 42.
McGill Pain Scale
AWARENESS URGENTLY NEEDED
Due to an enormous lack of education about recognition of symptoms, diagnosis, treatment and management of RSD/CRPS, it is not well recognized in the Canadian medical field. Many doctors have never heard of RSD/CRPS or the diagnostic criteria (Budapest Criteria). Without accurate information, RSD/CRPS is quite often misdiagnosed, diagnosed too late, or no one believes the patient's pain. Many are told it is "all in their head ".
Let us clarify this last statement: the consequences of CRPS is felt in the brain. Research has shown that CRPS is not a purely psychological illness but due to the "danger signals" entering the brain from the body, parts of the brain suffer and cause various symptoms. More information from: Moseley, L. PhD and David Butler Explain Pain www.noigroup.com. WHAT'S NEW?
As a result, many patients do not receive the proper treatment in a timely manner and they suffer needlessly. Why does this happen? It happens because doctors are not able to recognize the signs and symptoms unless they know the Budapest criteria. (Budapest Criteria).
Every doctor should have a copy. If you are a patient, please give your doctor a copy!
NOVEMBER 2, 2020. Colour the World Orange Day
To promote awareness of CRPS in the world, local bridges and landmarks will turn orange for the day. The CN tower in Toronto and Niagara Falls will turn orange. For more details please see: www.colourtheworldorange.com
To take part in this special day, here are some ideas: https://www.colortheworldorange.com/engagementcrps
To download a brochure on Colour the WORLD Orange Day:
HOW CAN I HELP PROMOTE CRPS AWARENESS?
You can help us promote awareness by ordering orange CRPS Awareness Bracelets!
The bracelet text reads "RSD/CRPS Awareness" and "P.A.R.C. www.rsdcanada.org".
1. Contact your local newspaper and tell your story.
2. Wear orange in November and/or your bracelet.
3. Turn a building orange for Awareness day i.e. a local landmark, city hall,
4. Hand out PARC flyers.
Please see the DONATIONS page.
Thank you for your support.
SEPTEMBER 1, 2020.
PARC PEARL Newslettter will be ready September. 1.
Get your copy of the latest news on CRPS, latest developments and emerging therapies.
TOPICS: Floating, 2020 CRPS Research, LILT, Virtual Reality,Your Medical Record:Why is it Important?, Pain Medicine Training Program, Bits and Pieces.
Get your copy!
RESEARCH: Coming soon...!
TORONTO CRPS CONFERENCE October 26, 2019.
Our warmest thanks to our speakers, Dr. Arash Taghvai, Dr. David Shulman and Dr. Tara Packham PhD (McMaster University) for their expertise on CRPS and their ability to communicate it effectively. Each of the speakers engaged the audience and patiently answered questions.Thanks to the audience who politely listened and turned off their cell phones so we could all hear effectively!
Special thanks to Jean Pamenter, PARC Director, who sponsored lunch and other conference costs.
OCTOBER CRPS Conference slides (Power Point) available from Dr. Packham and Dr Shulman. Search the DOWNLOADS page.
DO YOU WISH TO CONTRIBUTE TO PARC'S MISSION AND GOALS?: Do you wish to help further PARC's mission of informing everyone about the utmost importance of early diagnosis and treatment?
PARC's goals are: